NCC18 Virtual Agenda: November 9 and 10

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NCC18 Virtual Agenda: November 9 and 10

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Our Third Annual National Caregiving Conference will take place at Chicago Marriott O’Hare, 8535 W. Higgins, Chicago, IL. For our latest and most up-to-date agenda, please download our NCC18 app.

Register to join us in person or virtually.

We're so grateful to our NCC18 sponsors that make our conference possible.


Friday, November 9, Virtual Broadcast Agenda


Session Length is 50 minutes unless otherwise indicated. All times are Central Time.

9 a.m. How to Navigate Work While You're Caregiving with Vicki Salemi
Vicki Salemi is a nationally recognized career expert and spokesperson, columnist, speaker and author of Big Career in the Big City. This dynamic entrepreneur lives in New York City and is the founder of uncaregiver.com for today's caregivers taking care of family in an UNintended situation (short or long-term), UNwavering about truth and UNselfish about taking care of ourselves. Thrust overnight into the role when she got the first call about her mother's hospitalization in 2015, she saw first-hand how overwhelming taking care of a loved one can be (on top of their finances, taxes, everything). Your entire life, your everything, your identity, perspective, purpose--shifts. And nothing prepares you for the role, you just jump in. An advocate for the caregiver, being one herself (nearly three years and counting...), she knows how important it is to take care of yourself while you're immersed in your entire world getting flipped upside down with countless additional responsibilities. Looking at the bright side of things, realizing yes, things will slide, yes priorities will completely alter, you'll have to say NO to a ton of things, but there are ways to make it less bad, less dark, less alone and cope the best we can, mustering up strength and resiliency like nobody's business.

It's like that Super Man quote: Lois Lane looks at him and says, "You've got me. But who's got you?"

10 a.m. Caregiving Women: Bold Steps in Being Confident Change Leaders
Lisa B Capp is a dementia caregiving survivor who shared a journey of transformation as dementia consumed her mothers life over 18 years. Professionally Lisa's been a Transformation & Organizational Change Consultant, now she's a dedicated blogger and activist focused on Alzheimer's and dementia caregivers.

11 a.m. Finding Peace at the End
How do we give our carees (and ourselves) peace at end of life? Dr. Samuel Harrington, author of a new book, At Peace: Choosing a Good Death After a Long Life, will offer guidance toward a peaceful end for our carees and ourselves. Most people say they would like to die quietly at home. But overly aggressive medical advice, coupled with an unrealistic sense of invincibility, results in the majority of elderly patients misguidedly dying in institutions while undergoing painful procedures, instead of having a better and more peaceful death they desired. At Peace outlines specific active and passive steps that older patients and their health care proxies can take to insure loved ones pass their last days comfortably at home and/or in hospice, when further aggressive care is inappropriate. Dr. Harrington, a graduate of Harvard College and the University of Wisconsin Medical School, concentrated his practice at Sibley Memorial Hospital. His work as Sibley's patient safety officer representative to the Johns Hopkins Medicine Board of Trustees and his service on the board of a nonprofit hospice in Washington D.C. informed his passion for helping aged patients make appropriate end-of-life decisions.

1 p.m. Prepare to Care: A Train the Trainer to Help You Use Free AARP Resource

Research indicates that two out of five family caregivers feel they were not prepared to take on the role. And feeling unprepared makes them more likely to express negative emotions about the experience, such as feeling ill equipped, overwhelmed, guilty, stressed, sad, resentful and worried. Those who feel more prepared to assume the responsibilities are much more likely to report positive emotions, like feeling grateful, brave and lucky. How can we help family caregivers be more prepared throughout their caregiving journeys? AARP has created a powerful free resource and training package called “Prepare to Care” to help. Join us for this train-the-trainer session in which we will present the “Prepare to Care” materials and train you use them with current and future family caregivers in support groups, employee groups, community centers, places of worship and other local community gathering places

2 p.m. How Caregiving Inspired My Career Panel Discussion with Meagan Bates, Jenn Chan, who cared for her grandmother, and Tonya Regiro, who cared for her parents and in-laws

3 p.m. Finding Faith Through Fury
Christene Jackson is a mom, an entrepreneur, an author, an educator and follower of Christ, not necessarily in that order. Becoming a parent changed her life, 21 years ago. However, when her second child was born, she had  no idea what God had in store. Her world was turned upside down when she added the title of lifetime caregiver. Everything changed and nothing was as planned.

She shares a message of responsibility to live the best life possible,  regardless of the current situation. Her transition back to her faith  was a journey of a thousand miles. And her path led her to an enlightenment of faith, perseverance and determination. The desire to  share her message was planted long ago.

4 p.m. Caring for More than One Panel Discussion with Sharon Hall, who cares for her husband and her mom, Jane Felczak, who cares for her mother, grandson and nephew, and Amy Goyer, AARP Caregiving Expert

5 p.m. I Didn't Think I Could but I Did Panel Discussion
Can we date during caregiving? Can we start a business? Accept a promotion? Family caregivers share how they did what seemed implausible during a caregiving experience.

Saturday, November 10, Virtual Broadcast Agenda


Session Length is 50 minutes unless otherwise indicated. All times are Central Time.

8 a.m. The Transformative Power of Caregiving
Dr. Nicole T. Rochester is a board-certified pediatrician, Clinical Assistant Professor, and the CEO of Your GPS Doc, LLC, an innovative  company that helps aging individuals and their family caregivers navigate the healthcare system.

While helping to care for her late father, who had multiple chronic illnesses including dementia, Dr.Rochester witnessed the disjointed healthcare system from the other side of the stethoscope. Despite her medical expertise, she often struggled  to ensure her father received the care he needed. She realizes most  patients and families do not have access to this inside knowledge and has made it her personal mission to educate and empower others. Dr. Rochester was moved so deeply by her caregiving experience that she left clinical medicine in July 2017 to focus on being a professional health advocate, consultant, speaker, and business owner.

Dr. Rochester has written numerous blog articles on her website, www.yourgpsdoc.com, and also shares her knowledge and insight through social media, workshops, seminars, and speaking engagements. She has contributed to a variety of national online publications and has been interviewed on several podcasts, including AgeWyz, the On-Air Advocate, and On the Front Lines of Caregiving.

Dr. Rochester received her Bachelor of Arts degree in Biology from Johns Hopkins University. She obtained her Doctorate in Medicine from the University of Maryland School of Medicine and completed her pediatric residency training at Children’s National Medical Center in Washington, DC. Dr. Rochester serves on the Board of Trustees for the Maryland Health Education Institute, an organization devoted to developing health care leaders throughout the state of Maryland. She is a member of the Alliance of Professional Health Advocates, the American Academy of Pediatrics, and the American Association for Physician Leadership. She is married and the proud mother of two daughters.

9 a.m. The Male Perspective Panel Discussion with Jolyon Hallows, Patrick Egan, Danny van Leeuwen and Ben Carter
Jolyon Hallows was the primary caregiver for his wife, Sandra, who had Parkinson’s disease. For over twenty years, he cared for her as the disease progressed. In the last few years of her life, she remained at home and she needed total care. In those years, Jolyon learned how to be a caregiver. How to do the physical tasks such as dressing or feeding. How to modify the home environment to make his and Sandra’s life easier, and how to deal with the inevitable negative emotions that accompany caregiving. He has recently published a book on Sandra’s and his life together. The book, A Parkinson’s Life: And a Caregiver’s Roadmap, is part memoir and part “how-to” guide for caregivers. Jolyon is a published author of two management books, Information Systems Project Management, first and second edition, and The Project Management Office Toolkit, both published by AMACOM in New York. An accomplished speaker and seminar leader, he is on the faculty of a university certificate program in project management and regularly makes presentations for the local Parkinson’s disease society on the disease and on caregiving.

Patrick lives in Boulder, Colo., with his husband and a dog named Molly. He is the caregiver for his parents who live in a Senior Community nearby. He has a passion for using technology in a way that enhances and adds fun to the caregiver experience. As an informal “family tech help” guy, he understands the huge benefits digital tech can provide, while at the same time helping others grapple with the overwhelming number of issues that technology can present. He has a leadership background in Human Resources within the Medical Device field, and has provided training and consulting services for numerous Technology and Start-Up companies both in the US and internationally. As stated on his Twitter account, he is well-versed in “acronym speak” and is a CO-LGBT-HR-BOHO-MBA-HSP-ENFP-MAC kind of guy. Bottom line, he like to use humor and empathy to help others transition from technical overwhelm to using tech that cares – both for the caregiver and the caree.

Danny van Leeuwen, an action catalyst empowering people traveling together toward best health, wears many hats in healthcare: patient with Multiple Sclerosis, care partner for several family members’ end-of-life journeys, a nurse for 40 years, an informaticist and a QI leader. As a patient and caregiver activist, Danny focuses on learning what works for people: informed decision-making, patient-centered research, communication at transitions of care & technology supporting solutions created by and for people. Danny has presented about caregiving at the National Caregiving Conference, HIMSS, and the Medical Informatics World Conference. Danny serves on the Steering Committee of AHRQ’s Patient-Centered Clinical Decision Support (PCCDS) Learning Network and as patient expert for CDS Connect. He reviews PCORI research funding applications and serves as co-chair of PCORI’s Clinical Effectiveness and Decision Science (CEDS) Advisory Panel. Danny is active in the Society for Participatory Medicine and is editor of their newsletter. He is a technical expert for the CMS-funded Supporting Efficiency and Innovation in the Process of Developing CMS Quality Measures. Danny blogs weekly (www.health-hats.com) and was recently published in BMJ and JoPM.

Born and raised in Newark, New Jersey, Ben Carter is a professionally trained Life Coach, Speaker and Corporate Instructor who believes that all experiences, whether opposition or opportunity are life lessons. Ben incorporates his personal and professional experience to inspire individuals to acknowledge “life problems” by solving them with the “life purpose”. Ben’s personal story involves him rebuilding a relationship with his mom and sharing the responsibility of caring for her in the last months of her life. Ben used the experience of her untimely death as motivation to inspire others. Ben believes in the power of motivating and inspiring everyone to achieve excellence in their lives beyond the challenges that they may face by using their inherent skills, gifts and talents.

10 a.m. What’s Right? What’s Wrong? How to Make a Decision With Joy Loverde
Joy Loverde has a reputation for being a path carver and visionary. Joy is the author of the Who Will Take Care Of Me When I’m Old? and the best-seller, The Complete Eldercare Planner. The American Medical Association says, “It’s the best book we’ve seen.” Over 30 years’ experience as a media spokesperson, Joy’s appearances include the TODAY Show, Good Morning America, CBS Early Show, ABC News, Fox News, National Public Radio, SiriusXM, and others.

11 a.m. Turning the Struggle into the Purpose: Finding Meaning Through Caregiving Panel Discussion
Our Caregiving Visionary Award winners share how they find purpose during their caregiving experiences.

Sheila Warnock is the Founder & President of ShareTheCaregiving (aka Share The Care) and co-author of Share The Care, How To Organize, A Group To Care For Someone Who Is Seriously Ill.

Bruce McIntyre serves as the Executive Director of the Parkinson Foundation of Oklahoma. As a 14-year caregiver for his wife, Kathy, and as the author of Thrive Anyway, Parkinson Positive, Graceful Transitions, and Resilient Life, Bruce shares his expert guidance and warm humor with thousands of people each year.

Bev Foster is the founder and executive director of the Room 217 Foundation, a community health arts organization that uses music to change the care experience. Compelled by her own caregiving journey, Bev and her team deliver music care products, programs, and educational services to healthcare providers, family and volunteer caregivers across Canada.

Priya Soni is the Founder and CEO of The Caregiving Effect LLC, a platform and service launched to create a space for adults who have cared for their family members due to aging, illness and/or disability. She has developed a mission to build a movement of mentors, caregiver visionaries, who are utilizing their stories as a tool to help the many who will or are walking the path of caregiving. As a coach and certified caregiving consultant, she aids adults in turning the unexpected role of being a caregiver into a role of a lifetime—The Caregiving Effect, a term she coined.

Amanda Singleton is the owner of Singleton Legal, a caregiver-centered law firm.  Through her experiences as a family caregiver, she was led to become an advocate for all caregivers.  Her vision is to see her clients plan to care and be cared for, so that they are prepared and supported when the time comes.

2 p.m. Assessing the Family Caregiver with Seniorlink

3 p.m. The Future of Caregiving
Since 1996, Denise M. Brown, founder of Caregiving.com, has taken the temperature of the family caregiver experience through annual surveys. She’ll pull her research together to predict what will be hot in terms of products and services for family caregivers. She’ll also share a weather forecast for the future of family caregiving.

4 p.m. Love, Loss and the Journey to Lasting Peace: Finding Your Best Self During and After Caregiving Panel Discussion
Lisa B Capp is a dementia caregiving survivor who shared a journey of transformation as dementia consumed her mothers life over 18 years. Professionally Lisa’s been a Transformation & Organizational Change Consultant, now she’s a dedicated blogger and activist focused on Alzheimer’s and dementia caregivers.

Penny Patnaude is a Caregiver Strategist, certified Dementia Care Practitioner, an Alzheimer disease and dementia care Trainer and a Dementia Care Partner with the Alzheimer’s Foundation of America. As a former family caregiver for over a decade Penny understands the difficulties families endure when caring for a loved one with Alzheimer’s and dementia.

Dannelle LeBlanc is a Certified Caregiver Consultant, Certified Caregiver Educator and Certified Senior Advisor based in McKinney, Texas. She has 20+ years experience in patient support and health care. Dannelle offers purposeful training, support, and educational resources for family caregivers and senior care professionals in her home state of Texas, nationwide, and online.

Dannelle was a caregiver for her father-in-law who had Parkinson’s disease for 12 years. During this time her beloved mother passed away unexpectedly, and her own health became compromised. Through these life changing experiences Dannelle became inspired to help other family caregivers.

Dannelle specializes in offering self-compassionate and practical tools that nurture wellness and purpose for family caregivers. Her passion for training and education brings unique opportunities for family caregivers to find what works for them throughout the stages of caregiving. In addition, Dannelle is training to become a trainer in our Certified Caregiving Consultant™ program.

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