NCC19 Presenter: Natalie Bonfig

Rachel Hiles

NCC19 Presenter: Natalie Bonfig

Rachel Hiles
Photo: Natalie Bonfig, 2019 National Caregiving Conference PresenterNatalie Bonfig Natalie is a Turner Syndrome advocate who has spent many years volunteering or working on behalf of the Turner Syndrome Society of the United States starting in 2005. Natalie's 23 year-old-daughter has had two open heart surgeries, Celiac disease, Crohn's disease as part of her Turner syndrome diagnosis and graduated from college in May 2019.

Natalie’s advocating efforts have included being a secondary co-authoring on the the Clinical practice guidelines for the care of girls and women with Turner syndrome, giving a radio interview on Morning Coffee and Health, and participating in a Mystery Diagnosis called “Falling Through the Cracks” about her daughter. She also wrote a 16-page pamphlet after her daughter was diagnosed called, “Coley’s Story: Living with Turner Syndrome.” She also writes about life after her daughter’s diagnosis, loss, grief, and life. She has been published in The Medium, The Mighty, Thrive Global and The Light Hustler. She is currently writing a book called, "Self-Care for Medical Parents.

Join Natalie for her presentation at our Fourth Annual National Caregiving Conference:

How Self-Care is Possible After Your Family Member's Diagnosis
Friday 5 p.m.
There is a spotlight on family caregivers more than ever, but additional work needs to be done. We need to do a better job to encourage caregivers to take better care of themselves. Caregivers also need to learn self-care skills as well. When I was in the midst of caregiver my daughter plus two other children, I did a terrible job at self-care. Many of us find ourselves putting our family member’s health above everything in our life – mental and physical health, job, exercise, relationship with your spouse and others, healthy eating, sleep and more. After interviewing other parents and reflecting on my own experience, I am better able to talk about and educate other’s on self-care. I have written a number of articles on this topic.

I will talk about some great tools to follow which include seeing a therapist, finding positive outlets for your stress, finding your tribe and more.

My number one stress reducer is breath work. We will do some very simple breathing exercises that can have a profound change in your stress.



We are so very grateful for the support of the following sponsors of our National Caregiving Conference,
especially Embracing Carers™, this year's supporting sponsor:



~ NCC19 Agenda ~ Meet Our Presenters ~
NCC19 Virtual Registration ~ NCC19 In-Person Registration (Chicago) ~
~ Hotel Reservations ~ NCC19 Volunteer Registration ~ Sponsor or Exhibit ~
~ Testimonials ~ Virtual Caregiving Summit ~