NCC19 Presenter: Sharon Hall

Rachel Hiles

NCC19 Presenter: Sharon Hall

Rachel Hiles
Photo: Sharon Hall, 2019 National Caregiving Conference PresenterSharon Hall was a care partner to her 96-year-old mother who had vascular dementia and died at home under Hospice care with her and her husband, Rod, who has frontotemporal degeneration (FTD). Sharon is an active advocate for FTD, she is an AFTD support group facilitator and educator. She holds an FTD chat on every Monday and Saturday at 7:00pm ET, and hosts a monthly podcast on the 4th Thursday of each month at 2:00pm ET called “Talking FTD”, on

Sharon has participated in Medicare webinars, spoke as a care partner at the NIH Research Summit on Dementia Care and Services, is active in her state Alzheimer’s and Related Dementia Plan, and recently launched iCARE (Innovative Caregiving Advocates with Real Experience) along with MaryAnne Sterling, Denise Brown, Julie Fleming and Karen Garner. This is a group of advocates who will leverage the extensive knowledge and experience family caregivers have acquired through caregiving to transform health research, health policy, and healthcare delivery.

Sharon has recently begun to be involved as an e-Patient Ambassador for Coalition of Compassionate Care of California to educate on palliative care. She represents the dementia community in these efforts. Sharon was also the recipient of the 2017 Advocate of the Year Award at NCC17.

Join Sharon for her presentation and panel discussions at our Fourth Annual National Caregiving Conference:

Session #1

Panel Discussion: Is it possible to have a voice of change around Caregiving? What does it mean to be a Caregiving Advocate at the State & Local Level?
Friday 2 p.m.
Learn more about organizations focused on local and state caregiving initiatives. Learn how to get involved in their efforts through this engaging panel discussion featuring organizations currently on the front lines of advocacy efforts around caregiving. You will learn tips, tricks and channels to empower your caregiving expertise and get active in transformational change!

Session #2

Palliative Care Is Not Hospice And Not About Dying: What it is, How to get it, What it does
Saturday 10 a.m.
This session will explain how palliative care differs from hospice. Palliative is available from diagnosis of a serious illness. It does not need a diagnosis of 6 months or less to live. You can receive treatment while getting palliative care. Sharon Hall is an e-Patient Ambassador for the Coalition of Compassionate Care of California and is involved in a PCORI grant project to educate consumers on palliative care.

Session #3

Panel Discussion: Friends Make All The Difference In the World
Saturday 10 a.m.
The Beatles got it right. We’ll get by with a little help from our friends.

A 2005 study reported people’s strong friendships had dropped from three to two. A 2006 study stated that 25% of respondents didn’t have anyone they could truly trust.

We all need trustworthy friends. With a professional caregiver shortage upon us, we are going to need our friends more than ever as we journey toward old age.

You will want to attend this session if:

  • Your current friends all but disappear when you need help.

  • You don’t know where and how to find loyal and trusting friends.

  • You want to leave a toxic friendship but don’t know how.

Please join facilitator, Joy Loverde and panelists Sharon Cruse, Sharon Hall, Dannelle LeBlanc, and Jeff Peterson for what promises to be a highly insightful and lively discussion on the critical topic of having, choosing, keeping, and releasing friendships, and the amazing difference friends make in our lives.

Attendees will have a better sense of whether to take action to improve the quality of their friendships.

We are so very grateful for the support of the following sponsors of our National Caregiving Conference,
especially Embracing Carers™, this year's supporting sponsor:

~ NCC19 Agenda ~ Meet Our Presenters ~
NCC19 Virtual Registration ~ NCC19 In-Person Registration (Chicago) ~
~ Hotel Reservations ~ NCC19 Volunteer Registration ~ Sponsor or Exhibit ~
~ Testimonials ~ Virtual Caregiving Summit ~