A Day Closer, A Dollar Short

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A Day Closer, A Dollar Short

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fortable on the floor which is why we've been sleeping on a futon mattress like we're college students. It's the only way I could keep him off the actual floor. He's so weird. But it's a comfort since his seizures usually take place at night and sometimes in his sleep. He's already on the floor then there is no where to fall. I've already hurt my back once trying to catch a 280 lb. man who is 6'1; impossible.

Just having that one item checked off my to-do list before the surgery feels great. The last time he had a similar surgery (over eight years ago) where they cut open his head from ear-to-ear it was a process getting him up and down from off the floor. And we were college students sleeping on a futon mattress because it was all we could afford... :)

Today is a day of rest. I plan on doing nothing. I need to gain some energy as I've been battling my own issues. I've been suffering from a migraine for the last week. It's not out of the ordinary because I've had ones that have lasted over a month before. For some unknown reason it gets worse at night and I cannot sleep. So, I plan to play catch-up on my sleep.

Monday is the pre-op appointment with both the ENT and the neurosurgeon. I have a list of questions and I'm not afraid to ask them. In fact, they may be a little sick of me by the end of each appointment but as Marc always says about me, "I've got to protect my investment." And I've invested a lot in keeping Marc alive and well and I'm not just going to hand him over to a bunch of slice happy surgeons without completely understanding what the intentions are and being on the exact same page.

I spoke with the guest house I stayed at the last time, they can guarantee me three days to stay there while Marc is in surgery but at a hefty price that I have no other option but to pay. The social worker was able to negotiate the price down on one of the days but I have to find a way to pay for the other two. Then I am wait listed for the 11th and 12th at the guest house. I am really at the point where I might go buy a sleeping bag, a pillow and bring a blanket from home and camp out in the waiting room, as it is my only other option. And I'm not above it but Marc really hates the idea so I am trying to accommodate his requests as well.

It will work itself, I know. So for today, I am going to try to keep the worrying to the bare minimum.

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