At Some Point, Create a Plan to Avoid Hospitalizations
They were chaotic.
In early September, Richard fell at home. A son found his father after his father had been laying on the floor for a few hours. They brought him to the emergency room, where he waited for hours to be admitted. Once admitted, he endured more tests to see how far his bone cancer had spread. After one x-ray, the technician actually dropped a piece of equipment on Richard's foot. "What are you trying to do, kill me?" exclaimed a typically mild-mannered Richard.
During most of your caregiving experience, hospitalizations are part of treatment. In the hospital, your caree receives the diagnosis, treatments and sometimes a cure, even if only temporarily. A hospitalization is necessary because it has what you don't have at home to get your caree better.
At some point, though, I think you may want to create a plan to avoid the hospitalizations. I regularly mention a podcast I did a few years ago with Dr. Maison (Making the Most of End-Of-Life) during which he offers this helpful perspective:
As we seek more and more medical attention for our care recipients, take advantage of the opportunity to talk to health care professionals about the future. So, for instance, during a re-hospitalization for a similar reason, on the last hospital day, begin the conversation with your care recipient’s physician: What options do we have other than another hospitalization? Can we prevent another hospitalization? If we can’t, what other options do we have? What kind of improvement in my care recipient’s condition can we expect? How can I best keep my care recipient comfortable? (Note: We can began using the term "caree" rather than "care recipient" soon after this podcast aired in early 2010.)
I think of my father's friend, Richard, who spent some of his last days in the hospital. The hospitals days were traumatic and upsetting for Richard and his family. What if instead they had created a plan to avoid the hospital? What if they asked the hospice staff, If Dad falls, what can we do rather than go to the hospital? Or, better yet, what if the hospice staff spoke with Richard and his family about the possibility of falls and asked, "How would you like to manage a fall? We can create a plan to keep you at home, Richard." When the fall happened, the family could have called the hospice nurse on staff, who could have visited Richard at home, assessed the situation and then spoken with the doctor to create a treatment plan to keep Richard comfortable.
I wrote earlier this week about a client who cared for her mom at home. (Read "Sometimes, It's Not a Responsibility But an Opportunity.") I wrote about the last meal her mom ate, fed to her by her son-in-law. The next morning, a Tuesday, my client's mom fell and perhaps broke her ankle. My client called the hospice nurse who ensured her mom stayed home, comfortable and out of pain. My client's mom died on Sunday.
My client struggled with the fall. "What could I have done differently?" she asked. "How could I let that happen?" The reality is that falls happen. The reality was that her mom was entering her last days. The fall didn't cause her mom's death. Rather, her mom's body began shutting down and then the fall happened.
The most important reality is that her mom died at home--the long-term goal my client held--rather than in the hospital.
End of life can mean more falls and more frequent infections. It's important to talk about how to manage when the falls and infections happen. At the beginning of caregiving, situations like falls and infections mean a trip to the hospital. At the end of life, perhaps falls and infections can be best managed at home, where there is no waiting room full of really sick people, there is no clumsy technician, there is no stranger who is now a roommate, there is no middle-of-the-night poking and probing.
At home, there is comfort and familiar and calm. When days are numbered, you can never have too much comfort, familiar and calm.
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