Brain Tumor Specific Family Caregiving Guides

Delia

Brain Tumor Specific Family Caregiving Guides

Delia
(Editor's Note: Today, we welcome Delia, who cares for her parents, to our blogging team. You can connect with Delia on her profile page: @deliastanley.)

book-92771_640My husband, Michael, and I have recently moved my father into our house, who was diagnosed with Glioblastoma in 2013. We are all relocating to North Carolina soon, but his decline is becoming rapid and we need to support my father in medical appointments and activities of daily living.

Surprised by some of the memory loss symptoms we've been seeing, I started searching the internet for information or anecdotes that would tell me this is normal and unfortunately, it is. Someone else described their family member's memory issues as "someone with Alzheimer's", which is exactly what I was thinking, even though I do not have experience with Alzheimer's. It's the only word that comes to mind generally to describe the severity of the memory loss and how it affects my father's every day behavior.

Several hours and internet tabs later, I came across some PDF Handbooks specific to Brain Tumors and Family Caregiving. Though I would share with everyone in case you are going through the same thing! And if you are, please friend me. I'm new to the Caregiving community and would love to connect with people to share tips, tricks and general support. Thanks!

Here are the guides:

http://www.abta.org/secure/orientation-to-caregiving-2.pdf

http://www.abta.org/secure/caregiver-handbook.pdf

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2 Comments

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Lillie Fuller

Great post and thank you for the info. We never know when we might need the information others are sharing.

Denise

Hi Delia! I'm so glad you started blogging!! I'm looking forward to read your posts.\r\n\r\nAnd, thanks so much for sharing these resources--they look terrific. I love that you shared them to save another that precious time searching. We all need all the time we can get.