Fat Lip, Big Mouth

Caregiving.com Archive

Fat Lip, Big Mouth

Caregiving.com Archive
The other morning Hubby woke with a fat lip.

It was quite a surprise because he hadn't fallen out of bed, nor was there anything that he could have hit in the night. But BAM! There it was as big as all get out.

Hubby said he bit it in the night. I thought that he had his Lewy Body Dementia REM sleep disorder in full swing (pun intended) hitting his own face during a “fight”.

I had even thought he might have had a stroke so I had him do the S.T.A.T. signs for me -

Smile (looks weird but both sides are moving check),

Talk to me (jumbled but understandable, check),

Arms up (check),

Tongue out (sticking straight out no down angle, I bet he enjoyed doing that, check) whew no signs of stroke.

Whatever it was, there was no denying something happened to him.

Perhaps this was a “payback” for the hateful way he's been treating me as of late. Not just privately but in the presence of others. And harsh enough to be scolded by Oldest and Youngest Daughter on two separate occasions. Accusations of theft, personal insults, his insistence of leaving and moving out on his own, driving, the list goes on and on so you get the point.

Yes, I know he can't help it and he can only react to the things his brain is convincing him of but for the last 4-plus years I've been a 24/7 caregiver, a year before that a watchful wife/caregiver, a few months before that a concerned wife, a couple months before that we were working on repairing a damaged marriage, 17 months before that I was fighting undeserved divorce proceedings, learning how to live alone and deepening my relationship with the Lord. A while before that Hubby had an ongoing affair that shattered our world and the 24 years before that I was a homemaker, mother and wife living with and buffering for Hubby's PTSD.

So, separating the man from the disease isn't always easy especially when I'm feeling emotionally beat down by his harsh and hurtful words. I've shook it off, walked away, run it out, and yet there are times that my feelings get hurt and I run my big mouth.

These deep feelings have kept me away from blogging. The deepest hurt is his insisting that Hubby wants to leave. He even wanted to look into placement.

I feel like I've tried so hard to keep things easy for Hubby, yet he continues to reject me.

I wrapped myself in prayer but admittedly I don't even know what I needed to pray for so I asked for a Spirit of calm to make the contacts necessary for Hubby.

Eventually I did receive that calm and leading to make the contacts and this was actually before the big melt down with my mouth, just needed to throw that in.

Wouldn't you know it though, when I told Hubby I had made the contact he changed his mind about leaving for placement. Imagine that! He is cognizant enough to understand what it means if he chooses to go into a Nursing Home. I told a friend I felt like I was on a hamster wheel because he doesn't want placement but still wants to live by himself. Squeak! Squeak! Goes the hamster and the wheel.

Contact about placement was only for information. I wasn't sure what the process was or where or how to even start. The social worker at the VA was new so even she wasn't sure and referred us elsewhere, to another new person, who wasn't sure where we were even located on her map.

To my surprise none of our three local facilities were contracted through the VA. One never has, one sold so they don't and won't have a contract and one lost their contract due to issues. The SW didn't say why. Because I was almost in disbelief of the local facilities I actually visited the three places. She was correct and after walking into the one that lost their contract, if the greeting I received was any indication as to why, I could see! I would never want Hubby there!

The SW did give me the names of three facilities they did contract with that were the closest to us. But each one was at the least 45 miles away! She suggested I look on the Medicare.gov site to compare and research the three suggested facilities.

The first and closest one I looked up was an absolute No! No! No! A 2 and 3 star rating out of 5 and complaints on the medicare website was enough to dismiss that idea without ever seeing the facility for me. So Hubby has two choices if he chooses to go into a home closest to our location. The other two places were higher on the rating scale so if Hubby decides this is what he wants, we will be taking a trip to each one. This is breaking my heart apart in small pieces at a time.

I also had to ask questions that were hard for me to ask. How would it need to be paid for? Would I lose my home, would I need to find employment? Would placement nullify the guardianship?

I was assured that if Hubby chose placement nothing would change except his location. Being 100% Korean War era Service Connected Veteran qualified him to Nursing Home Care and if he decided he didn't like it, he was free to leave and come home. Nothing was permanent. That eased my mind a little.

It's been a few days since the melt down. Hubby has been in a nicer mood, for the most part. He still continues to need my presence even though her resents it. He won't ask others to do for him, just me. I'm heart tired and have neglected my own needs but this past week I'm trying to sort out what those needs are and working on them.

And to end on a good note, we FINALLY got the Home Health Aide hours straightened out and are once again receiving 10 hrs a week.

Please continue to pray for us as we walk through this part of the Lewy Body journey.

Like this article? Share on social

4 Comments

Sign in to comment

Denise

So... To me, this is a whine: \"My nail broke and I have to wait until this afternoon to get to the salon. Life is sooooo unfair!\"\r\n\r\nYour post is simply an update about a painful and challenging time.\r\n\r\nI think it's great that you share what's going on with us. We're always ready to listen. In my mind, I just hate to think that you're in the midst of a tough time and we can't help you because we don't know.\r\n\r\nI believe it's our job to help you figure out what's best for you. I hope talking it out with us helps that happen. :)

ejourneys

<a href='http://www.m40.siteground.biz/~caregiv6/members/kathy/' rel=\"nofollow\">@Kathy</a>, this doesn't read like a whine fest to me at all. You're telling it like it is and saying how you feel. It doesn't get any more real than that.\r\n\r\nMy \"Breathe\" song is by Telepopmusik. It has very few lines, often repeated, so I'm cutting out many of the repeats here:\r\n\r\nI brought you something close to me\r\nAnd left with something new\r\nI can see through your head\r\nYou haunt my dreams\r\nBut there's nothing to do but believe\r\nJust believe\r\nJust breathe\r\nAnother day\r\nJust believe\r\nAnother day\r\nJust breathe\r\n...\r\nI'm used to it by now\r\n...\r\nLying in my bed\r\nAnother day\r\nStaring at the ceiling\r\nJust breathe\r\nAnother day\r\nAnother day\r\nJust believe\r\nAnother day\r\nI'm used to it by now\r\nI'm used to it by now\r\nJust breathe\r\n...\r\n\r\nI'm so glad we're doing the VRide together! And I'm rolling that cruise idea around in my head, too. :-)

Denise

Hi Kathy--It's awful when love hurts. Just awful. \r\n\r\nI'm glad your daughters stand up for you. I appreciate Hubby's disease process. I also appreciate you--and how deserving you are of so much love.\r\n\r\nI love how you've decided to focus on your needs. What's the first need that comes to mind for you?\r\n\r\nAnd, what do you need from us?\r\n\r\n(When I posted about the cruise on Friday, I kept thinking: \"I hope Kathy can come.\" I hope this is on the list of possibilities for you. :) )

ejourneys

Kathy, my thoughts and prayers are with you and Hubby. Bless you for soldiering through such an ultramarathon of emotional whiplash. I wish I could wash away your exhaustion and wrap you in a soothing balm.\r\n\r\nThank goodness the home health aid hours got straightened out.\r\n\r\nOur brains can know not to take things personally but our hearts still ache. May your needs be met and your spirit nurtured. (((Big Hugs)))