Feb. 14

Dilys
Mum got out of the hospital on Friday the 5th. The doctor who was taking care of her wanted to put in a feeding tube either through the nose or into the stomach. I didn't let him because I thought it was really weird putting in a tube and sending her home. What was I to do with that?

I got mum out of the hospital and the next Wednesday went to see her geriatrician. This doctor said that while mum does not have ferrous anemia and while her protein count is still ok, she doesn't need a tube. If and when she needs one, the doctor will have it done and it will be a gastric tube. She says nasal tubes are far worse as the patient always pulls them out and they hurt more. She gave me another supplement to give mum - Calogen - which will add 300 calories a day if mum takes 30 ml.

The doctor also wants a phonoaudiologist to do an evaluation of how mum is swallowing and from there decide on what kind of food she should have. So this is something I have to set up. In addition, she says mum should not have her tooth fixed, but just pulled. This is due to the Parkinson's. She thinks that the position in a dentist's chair, with the head back, could cause mum to aspirate saliva. For a Parkinsonian, dental work can be dangerous. As for mum's pain, it could be from gallstones and there is nothing to be done as mum is too old to operate. Mum is now very thin and her bones seem to stick up so more propensity for bedsores.
So mum is at home and she is even more difficult than before. She refuses to eat, to drink etc. I have become 'she' and 'her' as in, 'there she comes to boss me', 'tell her to leave me alone'. Mum is now very nasty, something she wasn't all her life long.

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