Handing Over the Keys: Coping with Dementia

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Handing Over the Keys: Coping with Dementia

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keys-233368_640Tonight is another ordinary night; well, ordinary for this household. My mother has dementia and is also in a wheelchair. Mom has a chronically dislocated hip prosthesis. Because of the dementia, Mom had not been able to follow the precautions required with a new hip. A MRSA infection and flare-ups of infection also affected healing around the new hip. Despite a leg brace and what is called a constrained liner, the hip repeatedly dislocated and with each dislocation, because of the constrained liner, a surgery to relocate the hip was required.

After approximately three "regular" dislocations and two dislocations from the constrained liner, her orthopedic doctor made the decision, in June 2013, to leave the leg alone. Mom and her brain cannot handle another major surgery. Surprisingly, Mom is happy, without significant pain, and is "business-as-usual". She transfers really well with her good right leg.

The problem with "business-as-usual" (dementia) is that Mom is not cognizant of her limitations. Today, we met with a nurse and administrator from Home Helpers. The nurse asked Mom if she could walk with a walker up and down the hallway. Mom smiled and replied, "Sure". Mom will tell you how she picked something up at the store. She will tell you how she will do the laundry and pay the bills and not to worry about them. If you tell her that she cannot be home alone, she will ask, "Why on earth not?"

Left to her own devices she will try to walk across the room even though the dislocated leg is six inches shorter than the other. She will drink coffee all day and not eat. She will wear three shirts and a sweater in the 90-degree heat.

Until maybe last Thursday, nights for weeks on end were hell; they were frustrating and stressful. Despite the wheelchair and the crippled leg, each night Mom would insist that she had to go home. "I have to get home to my family and cook dinner". "My husband is looking for me." (My Dad passed in 2005). She would do anything she could to get out of the house, even in the pitch darkness.

One night she was screaming, "Help me, Help me." She won't let me leave. At one point, she wheeled herself out the front door and down off of the porch (no ramp) and into the driveway. Every night was a nightmare. All I could imagine was a women wheeling herself down a dark busy street to nowhere or worse yet, the four-lane highway. She could be struck by a semi. She could fall out of the wheelchair onto the cement and break the good leg or crack her head open.

One night, I just handed her the keys. I was exhausted.

That was the end of her trying to leave. All I can think of is that she felt helpless and out of control. Once she realized that she was ALLOWED to leave, but couldn't (she cannot walk/or drive), she snapped out of it.

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Jenn

Yes, Teresa........I will be here to help prop you up too! I am becoming well seasoned.........;-) God Bless you!

Teresatalk

I'll be in line when our situation worsens. My husband (68) is already on so many meds for his TBI, I dread it if it will someday require more. Fortunately, he seems to be handling them all well so far. (Must be all those drugs he took in the 60s!) But I figure if you need them to be able to stay home, then by all means, use them. If they go to a facility somewhere, I'm sure he'd be drugged up there too and more!

LilMagill

I'm not there yet with my mom, but I fear the day it happens. I hope I'll remember how you solved this problem when it happens to me! Thanks so much for sharing it.

Jean

I can't imagine living in your shoes. My mom did the same kinds of things, but I only heard about it from a distance, from my sister who lived with her. Whenever she was hospitalized, for instance, when she broke her hip, one of my sisters always had to stay with her at the hospital because she would get out of bed or pull out IV's etc. \r\n\r\nEven though I cared for my mother-in-law for several years, she was bed bound for the last 4 years so I didn't have to worry about keeping her safe from herself. I don't think if I would have the fortitude to do what you are doing right now. i wish I had words to help…

Jenn

Thank you LIsa, Denise, and Angie! How refreshing to have people who \"get it\".

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