Just An Update

Casandra Porter

Just An Update

Casandra Porter
cibo00_abstracted_group_interaction_(1)Recently, I've been running between two households. My own and my mom's. She broke her arm the week before Marc went into his surgery and because of the lack of help from my siblings, I've had to pick up the slack. I've developed a routine where I spend Friday and Saturday nights at her house with my husband and we prep her meals for the following week. She's pretty low-maintenance and can do most things for herself now. At first, it was a nightmare because of the level of pain and meds she was on. For 68 years old, my mother is in remarkable shape and she bounced back rather quickly.

My own household is still the problem area. We've fallen into a routine now that works well. Making sure he gets fed during the day, takes his meds on time, etc. All this is workable now. Tiring but workable. Marc doesn't need constant supervision, even with the seizures, they seem to be under control with this last medication change he's had. What he does need is help getting to and from doctor appointments. This week alone, I will work one day because he has a doctors appointment every day this week. He's seeing six specialists plus his primary care doctor. It's like we live in the doctor's office and there is just test after test. At this point I don't even know what they're testing for any longer. What's worse is they are far from us. About an hour drive each way. So, the commute alone takes up my day.

So, I have been looking for help. Friends, family, anyone that can help and give me a chance to work because we are living on one income, mainly. His disability checks barely help. My last pay check, I worked four days. I barely had enough to pay rent. So, I can't keep taking the days off to take him to and from MD appointments.

I was even looking to hire a caregiver to do these things because it'd be cheaper than sticking him in a cab both ways. Yet, everywhere I turn, it's only elder care where I can find this assistance. I mean, the resources here are pretty much non-existent if you aren't elderly.

This is where I am this week. Still looking for any help I can get because the friends and family, just aren't there. Those that want to help, do what they can but for the most part what I really need, no one is able to provide me.

And I can't complain about any of this really because it isn't there responsibility, it is mine. But every idea or avenue I've ventured has just turned up a dead end. All I can do is what I can do, though.

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Casandra Porter

Thanks Pegi, \r\nI am still checking State and county resources when I can cipher through the websites that are more confusing than anything :) \r\nHe's not military but I have had a few suggestions for other resources that I am checking into.

Casandra Porter

Thanks Richard :)

Denise

Hi-You are so right--it's soooo challenging to find help when your caree is under 60. \r\n\r\nDoes your employer by any chance have an Employee Assistance Program? If so, you could check with the EAP about services. Often times, an EAP can do research and search for help. \r\n\r\nHow are you sleeping at night?