My Reply In Warrior Mode

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My Reply In Warrior Mode

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My reply to a post from a friend on a private facebook chat in which she asked if any of the medical professionals ever insinuated that their loved one was lazy. Their loved one has FTD as does my husband:

This is my experience and my belief. My husband is NOT lazy. He has FTD and the sequencing and the efforts required to move in the proper directions at the proper times are exhausting. If I am not here and he needs something and tries to do it for himself and if it involves many steps he inevitably slides to the floor or goes to sleep in his chair and waits for me. Today one of the physical therapists where he is currently residing to hopefully recuperate was trying to get him to sit up alone without support. He has not been able to do that for a long time. I said something and I could tell she thought I baby him so I left and we will have the conversation in private in a calm and hopefully educating conversation. I may baby him. Any other approach is fruitless and we have settled that matter with his doctors and we are all on board with it. But, there are many well-meaning professionals who believe the patient is lazy or coddled or stubborn and so what!! He is not lazy. So tomorrow I will calmly explain that I prop him up to eat from his chair and I prop him up in the wheelchair on both sides if we are to sit in one place for long and I count to three and help him sit up first or he flounders around like a beached whale and that exhausts and frustrates him. So they can stick that LAZY where the sun don't shine. He is my hero and I am his champion.

 

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