Saturday at the Caregiving Races

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Saturday at the Caregiving Races

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Saturday rolled in and I woke up knowing my day was full of fun times. The aide would be here at 9 a.m. and I would leave to pick up my grandson, go to breakfast with him and then both of us would attend a church picnic at a local park. I was enjoying the luxury of having an aide on Saturdays when I received a call from her agency that she would not be here today. The battery in her car had died. And, just like that, my day turned about face and upside down.

My husband loves our aide. I love her. She is a young, single mother who fits right in with us. There is only one problem and it is, unfortunately, a big one for us. She has called in more times than we feel comfortable with in light of the fact that it throws my husband for a loop and, on this occasion, completely changed how I would manage my day. Not such a huge thing for me in that respect but a biggie for my husband. I found a way to go to the picnic and my grandson and I grabbed biscuits at a drive-through instead of a sit down at one of our favorite places. A friend helped out with my husband buying me the time to spend at the park. I love my friends.

The other side effect was the workload that descended into my day. My husband is incontinent and now does not feel when he needs to use the bathroom so there are tons of laundry each day. And, yes, we are using depends, waterproof sheets, waterproof padding, etc. He pees so much and so often that his loads of laundry consist of full bed and clothing changes. I am waiting for my fifth call to action to happen at any time.

The result is that I am exhausted. My knees are aching, my legs are aching and my back is aching. Not complaining but realizing how much the aide helps and how having an aide makes it possible for me to keep my husband home and helps me to get outside stuff done or spend time with my grandson is an eye-opener.

We swallowed our change in plans and adapted. He adapted so well that he thought eight this evening was tomorrow morning and remarked on the storm that must be coming. It was a little too dark outside for that time in the morning. Once I let him know it was the night he put his head in his hands and said no drugs had ever done him like this FTD. He is talking in a voice much like a pirate's gruff voice so I started talking in pirate talk and that is how we made it through today. They say that any landing you can walk away from is a good landing. I will apply that to our daily lives now. Not crashing earns us a high grade at the end of any given day.

So, I sit at my laptop with a cat lying on my chest and my husband in the bed for now at least. I spend as little time as possible staring at our circumstances. No value added and much value subtracted. Each day is a day unto itself.

Next week I am investing in a condom catheter and I hope that it keeps him dry. There is a funny story on that topic but I will leave it for another post. As a matter of fact, there are several funny stories on the way to deciding to make an attempt to use the catheter. I am certain you can imagine and probably are at this point. I imagine there will be more funny stories to come. The subject of the conversation lends itself to all sorts of faux pas' and awkward moments.

Signing off for now because I think the washing machine is still and I can't let that happen. Onward and upward! To infinity and beyond!

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