Step

Michelle

Step

Michelle
stairs-70301_640I recently read an article that explained that, in vascular dementia, the progression of the disease is such that the individual may stay at a certain level of functioning for a long while and then take a big step downward.

Well, there it was in black and white. It explained why Tommy no longer helps with transfers, no longer bears his weight on his legs even with help. It also explained why he is not eating as well as before.

This raises so many questions. Will I be able to get the help I need? I don't want to burden my sons any more and I'm afraid they will injure themselves lifting their dad.

Will I have to place him in a facility? As Mar (@marfromwi) wrote in her May 27, blog, Buddy Taping, "The routines and protections we have in place may not be quite enough. The freedoms I am used to might need to be adapted once more. The inexorable march of this disease for my husband has taken yet another step."

One thing's for sure. I'd better get ready to step with it.

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4 Comments

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Denise

These steps can feel so high and so tough to manage. Know we're here to help figure out each step and to support you as you take them.\r\n\r\nWishing you and yours peace this holiday season.

jan

Thank you for taking the time to share your concerns with us. We are here to support you as you \"do the homework\". I hope you find the answers and direction you need quickly in the area you live, and it is accessible to you. You're doing a great job, Michelle.

Jean

<a href='http://www.caregiving.com/members/michelle/' rel=\"nofollow\">@michelle</a>, My MIL had vascular dementia caused from series of TIAs over time. She definitely experienced plateaus and declines, but we also had a significant improvements a couple times. My MIL had been eating good, getting around slowly with walker, then suddenly didn't want to use walker, only wheelchair, went to eating and drinking barely anything overnight and sleeping nearly 20 hours daily. Lab work was all negative and we just thought she was nearing the end and doctor recommended Hospice. Then, she slowly began eating a bit more and sleeping less, regained some weight and got too well to qualify for hospice. Our hospice nurse told us that the course of vascular dementia is so unpredictable. It was pretty amazing, really. I figured her brain must have done some rewiring after another TIA. So she went on to live more than 2 years after that. At least it helped to learn, that the course is not linear in the case of vascular dementia.

Hussy

<a href=\"http://www.caregiving.com/members/michelle/\" rel=\"nofollow\"><a href=\"http://www.caregiving.com/members/michelle/\" rel=\"nofollow\">@michelle</a></a>, thanks for posting this. We too seem to have reached a turning point after a long plateau. I've been assessing our current set-up and trying to figure out what kinds of changes are needed. We've already made a few, but I know more will be needed.