Tell Us: What Do You Know Now That You Wish You Knew Then?


Tell Us: What Do You Know Now That You Wish You Knew Then?

directory-229117_640“Experience: that most brutal of teachers. But you learn, my God do you learn.” ~ C.S. Lewis

Perhaps the caregiving experience is one of the most brutal of teachers.

So, I'm curious: What do you know now that you wish you knew before? What insight have you gained that you wish you had before caregiving started? And, how would life have been easier if you had that insight?

Please tell us in our comments section, below.

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I wish I had known that I was comitting to a Marathon in my Caregiving journey so that I could have made better choices with my possessions. I also would have approached my Grandmother with a different kind of conversation knowing we were going in for more than a year or two, living with her in her home!

Lillie Fuller

When I was caring for my dad, who suffered with Parkinson's and dementia, I wish I knew then how to deal with people with dementia. I found it so difficult caring for my dad, I couldn't reason with him and I would get so angry and mouthy with him. It hurts my heart now to think of some of the episodes we had. I ended up sticking with my dad to the end though and even when he was placed in a convalescent home I was there everyday! He didn't ever forget who I was or call me by someone else's name.


I'm positive if I knew just how many times I have been brought back from the brink, \"looked over the precipice\" and was dragged back, had an opportunity to learn and took it, saw how much grace has been lavished on me....I would be the most humbled, victorious and thankful person on earth and not waste one day of living. Oh, wait....I DO know all that NOW.....


I wish i knew:\r\n<b>1.<b /> what questions I should ask (because healthcare professionals don't always tell you what you should know)\r\n<b>2.<b /> about possible behavior changes with UTIs (and that a elevated temperature isn't always present)\r\n<b>4.<b /> that I had better known the symptoms of a TIA &amp; should have insisted on a visit to the ER when she didn't want to go\r\n<b>5.<b /> to look closer at long-term-care policies (we missed benefits we didn't know we could get)\r\n<b>6.<b /> ABOUT THIS SITE before my primary caregiving ended


That the friend or relative or professional who promises, \" I'll have your back,\" may change over time, and that that's ok (for me) as long as SOMEONE has it. However l sincere the promise, and how badly I needed it, many of the people who've really really been there for me have changed over the years, because they moved, broke a foot, lost a spouse, gained a grandchild out-of-state, etc. Each time, I've felt lost and angry, even as I understood it (I'm being honest here). Each time, it took an exhausting while to adapt. But each time, someone eventually replaced them, esp. as I've gotten better at asking for what I needn

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