Tell Us: What’s Today’s Caregiving Stress (Day 1)?


Tell Us: What’s Today’s Caregiving Stress (Day 1)?

pencil-1203977_640As you may know, I’ve been collecting data about your caregiving stress, the overlooked epidemic in our communities. During a recent webinar, The Family Caregiver’s Stress, I shared the current results of our ongoing survey and share thoughts about what’s needed to minimize the stress.

We know that caregiving stress can be ongoing. I also believe that caregiver stress is constantly changing, that what stresses you on Monday is replaced by a different stressful situation on Tuesday. To show the constant and changing face of caregiving stress, I’d love for you to tell us about each day’s caregiving stress over a period of five days. Your stories about your day’s caregiving stress will make our data about your caregiving stress that much more compelling.

In our comments section, below, tell us about the stress you’re feeling today.

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Today's stress: I awakened when I heard Hubby (who has Lewy body dementia) in the foyer, so I immediately headed that way to see what he was up to. He had gotten up with wet clothes/sheets. Not at all unusual, in spite of wearing Depends AND an extra pad. (That alone stresses me - why don't these things do a better job???) But today evidently he was actively overflowing when he stood up, so there is a puddle at the foot of the bed, which he then walked through and tracked from his bedroom into the hallway and foyer. I found him and directed him straight to the bathroom and told him to stay on the mat while I donned gloves, grabbed the spray bottle and paper towels, and went to work. I'm almost done when he walks into the hallway, still dripping/tracking (not sure which), so I have to re-clean that area. Again, just as I'm finishing, he does it one more time. Not as bad this time, but yep, 3rd time to clean there. Guess I should have washed him and changed his Depends first. I was already absolutely starving, so I had to do all this while trembling and weak from hunger (I struggle with low blood sugar), then wait another 30 minutes after finally taking the morning pills before I could eat.


Today's stress is the Monday morning blood draw. Mom is anemic and we wait until the afternoon to learn her hemoglobin number and if we need to head to the transfusion clinic. Monday's (and Thursday - another blood draw day) activities are penciled in on the calendar... need to be able to change at a moment's notice.

Lillie Fuller

Today's stress is way too stressful! After very little sleep last night, because my mom slept all night and I couldn't sleep, worrying that she was sleeping through, I am trying to get my mom ready for an appointment with the Orthopedic Doctor. We have to take Non-Emergency Transportation and they didn't call to confirm the ride and I can't reach anyone in Transportation to verify. My mom is concerned that they will cut her clothes off of her, WHY ME LORD?, so she wants to wear the biggest, oldest pair of pajama pants she has! That's not happening! \r\n\r\nHappy Monday! Have a great day everyone!