Tell Us: What’s Today’s Caregiving Stress (Day 2)?

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Tell Us: What’s Today’s Caregiving Stress (Day 2)?

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As you may know, I’ve been collecting data about your caregiving stress, the overlooked epidemic in our communities. During a recent webinar, The Family Caregiver’s Stress, I shared the current results of our ongoing survey and share thoughts about what’s needed to minimize the stress.

We know that caregiving stress can be ongoing. I also believe that caregiver stress is constantly changing, that what stresses you on Monday is replaced by a different stressful situation on Tuesday. To show the constant and changing face of caregiving stress, I’d love for you to tell us about each day’s caregiving stress over a period of five days. Your stories about your day’s caregiving stress will make our data about your caregiving stress that much more compelling.

In our comments section, below, tell us about the stress you’re feeling today.

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Michelle

Hi Teresa,I hope your husband is breathing better today. How have you been feeling?

Michelle

We feel as if we are holding our carees' lives in our hands all the time, don't we? So many appointments, so many prescriptions, so many needs. I understand but all we can do is all we can do.

Michelle

Thanks Deborah. It is difficult but I am thanking the Lord that he is home and is doing better.

Donna

Day 3: My husband has low lung function because of military exposures and his lower lungs are not working. Lately, In the evening, after dinner, he acts like he's going to pass out. He doesn't believe me and thinks my walking him around is in his way and I might make him fall. I just have to say okay, but stand nearby. It's so strange and scary, but he's very cooperative, yet confused why I'm standing by him. It's like a baby falling asleep, then you go to lay them down....no, no, I'm awake, don't put me to bed!

Donna

Colleen, it's really hard to keep it all together, I know. Keep your chin up and hopefully this allows you a way to figure out how to keep it all in a timeline of sorts. I've made myself an Excel/Numbers spreadsheet with multiple sheets, in the file, medications, surgeries, physicians, doctors notes and many more. I have an iPhone, iPad, and now a MacBook (oh the PC cried when I turned to Mac :-)!). It allows me to access his workbook, file on any device and keep it up to date. I still find areas I have gaps, but it helps me keep calm that I have almost everything together. Hope your husband is doing better!

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