Tell Us: What’s Today’s Caregiving Stress (Day 3)?

Denise

Tell Us: What’s Today’s Caregiving Stress (Day 3)?

Denise
rock-288776_640As you may know, I’ve been collecting data about your caregiving stress, the overlooked epidemic in our communities. During a recent webinar, The Family Caregiver’s Stress, I shared the current results of our ongoing survey and share thoughts about what’s needed to minimize the stress.

We know that caregiving stress can be ongoing. I also believe that caregiver stress is constantly changing, that what stresses you on Monday is replaced by a different stressful situation on Tuesday. To show the constant and changing face of caregiving stress, I’d love for you to tell us about each day’s caregiving stress over a period of five days. Your stories about your day’s caregiving stress will make our data about your caregiving stress that much more compelling.

In our comments section, below, tell us about the stress you’re feeling today.

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Christine

In reply to my own question above regarding caregiver stress ('surely there must be a better way?'), I have decided that I have a responsibility to myself in this difficult care-giving situation to maintain a self-care routine daily to manage my stress levels.\r\n\r\nThis care-giving experience feels like running a marathon that can last for years. As for any marathon athlete, disciplined daily self-care is essential (and I'm sure they allow no excuses like 'I'm too busy/stressed/upset' etc.). I am making a list of activities that make me feel happy and relaxed. I am trying a 'little and often' plan: a yoga exercise while waiting for the dinner to cook, a mindfulness breathing exercise waiting in a queue or for an appointment.\r\n\r\nIf I am worn out and unhappy, how can I continue to support my mother effectively at end-of-life? I have realised that caring for myself daily is as important to my caree as caring for her.

Christine

Oh Heavens!\r\n\r\nHugs!!

frogger16

I relate also Desiree & Christine.....Today I felt overwhelmingly tired. I forced myself up and out the door for our dogs vet apt., came home and luckily I could grab a few extra zzzz's while DH napped. I've wondered lately, whats going to happen if I get sick. or just cant push myself to do one more thing. \r\n While at a family gathering this past week DH & I listened to others plans for vacations, fishing, amusement parks, road trips, hiking, camping, a retired couple living out their long awaited retirement dreams...... it was hard to not feel jealous & long for one of those carefree days we use to have before DH's diagnosis.\r\nMy DH woke this morning, sat on the edge of the bed wishing he could have just one day where he woke pain free and experienced a whole day of \"fun\" again or one day he felt good & could do all the house hold responsibilities for me.\r\nI came & sat beside him, took his hand and said, \" me too Hunny, at least we still have each other.\"

Christine

I totally get this, Desiree.\r\n\r\nToday I am stress-exhausted. When my mother was diagnosed with terminal cancer two years ago, at her request, I promised to care for her in her own home. I was happy to do this. It seemed doable then. But I find that I can never rest, even when on a break. Like you, I am constantly on the run. And when not running, I am constantly on the alert, day and night. This also causes sleep deprivation. I realised this when I crashed out asleep today, exhausted. Surely there must be a better way?

Desiree

This morning I got another reminder that I must hurry up and get my foot healed. Because the upcoming weeks are just overflowing with appointments and gotta-do events.\r\nWow. Like I wouldn't just wave my magic spatula, recite the secret recipe, and fix this instantly if I could. Cause, Heaven knows that while I may be slowed down right now, my workload has not diminished by a single dirty dishrag.