Tell Us: What’s Your Caregiving Stress (Day 2)?


Tell Us: What’s Your Caregiving Stress (Day 2)?

As you may know, I’ve been collecting data about your caregiving stress, the overlooked epidemic in our communities. During a recent webinar, The Family Caregiver’s Stress, I shared the current results of our ongoing survey and share thoughts about what’s needed to minimize the stress.

We know that caregiving stress can be ongoing. I also believe that caregiver stress is constantly changing, that what stresses you on Monday is replaced by a different stressful situation on Tuesday. To show the constant and changing face of caregiving stress, I’d love for you to tell us about each day’s caregiving stress over a period of five days. Your stories about your day’s caregiving stress will make our data about your caregiving stress that much more compelling.

In our comments section, below, tell us about the stress you’re feeling today.

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Grace girl

Today I am stressing about an upcoming scheduled vacation. About 8 months ago, Thom and I scheduled a trip to Ireland with 4 other family members. This was before we knew that his cancer had returned. The illness has progressed significantly since then—so much so that all of the responsibility/logistics of this trip would be mine NOT to mention the concern about him suddenly becoming ill and needing to be hospitalized or flown home. The family dynamics during this trip could be strained with my husband’s situation as it is. It is complicated and frightening for me, but even more than that, I worry about taking away his ‘hope’. This trip seems to represent a future for him—one where he continues to be able to dream about travel and adventure. Do I have to be the one to take it away from him?

CathyJ is ironic to me how similar the behaviors become with this wretched disease. Substitute cookies for crackers, newspapers for toilet paper rolls, and items on the never ending list and it feels very, very familiar. Top it off with stress of sibling stress! One of the hardest parts of caregiving, I think, is remember that we are doing the right thing, we are doing enough, and that we don't need permission to throw away the toilet paper rolls! Hang in there.


My husband is a wonderful support and loving co-caregiver to my mother. Lately, we have had so much on our plate and a family situation with with a sibling has added additional stress and duties. I am stressed because he is worn out and I worry about the impact of all the stress on him. He is so strong for me and I hate that this is taking a toll on his energy. When he tells me he is \"worn out\", I know he is past tired.


Recently, Robert has developed the habit of getting up and down out of bed throughout the night. He often wants a snack at 3 a.m. How he knows it is 3 a.m. is beyond me but he is often right on the hour. I know he is miserable and I love him but up and down during the night is stressful. I find myself getting irritated and losing my patience and I don't like that about myself. At this point in our journey, I find myself easily angered and frustrated. I feel as if I am going back through the years when my children were babies. There is so much sorrow in me. Sorrow is covered by anger and frustration. I am grateful for this site where I hear others talking about the same challenges.


We are in the middle of another heatwave. My stress is to keep hubby cool and comfortable enough so that I won’t have to have him rushed to the emergency room as I did earlier this month.