Tell Us: What’s Your Caregiving Stress (Day 5)?

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Tell Us: What’s Your Caregiving Stress (Day 5)?

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geyser-635309_640As you may know, I’ve been collecting data about your caregiving stress, the overlooked epidemic in our communities. During a recent webinar, The Family Caregiver’s Stress, I shared the current results of our ongoing survey and share thoughts about what’s needed to minimize the stress.

We know that caregiving stress can be ongoing. I also believe that caregiver stress is constantly changing, that what stresses you on Monday is replaced by a different stressful situation on Tuesday. To show the constant and changing face of caregiving stress, I’d love for you to tell us about each day’s caregiving stress over a period of five days. Your stories about your day’s caregiving stress will make our data about your caregiving stress that much more compelling.

In our comments section, below, tell us about the stress you’re feeling today.

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Denise

Thank you all so much for sharing about your stress. I hope it helped to release and know it helps me as I advocate to get help for you to minimize your caregiving stress.

lookingheavenward

My stresses today were once again explaining to yet another nurse who just doesn't understand about Mom's inability (that is WELL documented) to travel for Dr's appointments. The other stress was having the engine light come on in our only vehicle, taking it to the mechanic and having the mechanic lie to me, telling me I have to travel 1 1/2 hrs away to get it fixed and finding out he said that because he has a beef with all of the other people in town and won't send any clients their way - he sends them 1 1/2 hours away instead. Here I was thinking I would have to wait 4 1/2 months until my brother comes here in order to fix the car! I called back and spoke to a different person who was able to fix the problem in just a matter of minutes! Along with those stresses, Mom is having a REALLY rough day and was barely able to speak for most of the day, and she didn't sleep at all last night. It is going to be another really long night!

Lillie Fuller

Today's stress is MONEY! UGH. Wondering and worrying. . This half month business is stressful and the stress builds as the days go on and sometimes it feels like there are 55 days in a month.

Number4

Day 5 - Today, was horrible yet accomplished! The nursing home my mom is in, I've been trying to get my dad in. Although he has a valid UAI (Uniform Assessment Instrument) by the county, they say they go by different standards. There are other issues that go with this, but I'd have to write a book. One thing was validated to today (on video that I took). I wasn't sure if it was me, but now I know it's not. But the Nursing Home has monthly Buffets, ever since I had this discussion with the Administrator (long story) I felt she was ignoring my Mom who is in the Nursing home and Me and my father, for whom I am trying to get in. Today was buffet day and I started rolling the camera as she started visiting all the residents and their families. I was able to shoot her coming by our table, looking at us and by-passing us. I also shot a clear diagram of all the tables, of which she visited ALL BUT OURS! Then I was able to capture her coming back around to visit the newly positioned family behind us - AND SHE BY-PASSED US AGAIN! I don't know what I am going to do with it, but I have it if only for my own validation that it is not in my head or my feeling of isolation. It is TRUE, it is VALID, and that is terrible for her to exclude us because she may fear confrontation with me or her own guilt with talking with my father because they don't want to admit him. SHAME ON YOU!!!!!!!\n\nBTW - The nursing home is Loudoun Nursing and Rehabilitation Center (LNRC) in Leesburg, VA in Loudoun County- which is rated among the highest quality of providers. I guess that is for some, but not ALL! I'm pissed!

frogger16

A stress of sorts began when I was up 4am this morning & went to set out DH's med box & found it was empty...I'd forgotten to set them up last night, for the week. I like to do that task in the evening so we are good to go in the morning & for a week ahead. That part wasn't a big deal & I'm organized to quickly get that done. The stress started when I realized hubby wasn't responding to this mornings med alarm going off (thats his que to take his med). I had to wake him up out of a sound sleep (hed been up most the night unable to sleep). I guess its just a general stresser realizing he is declining in mental functions to the point I needed to create a bill box & alarm system. And now, there are going to be times I cant count on him responding to the alarm on his own (and at some point it will totally be my responsibility...another responsibility added.)\r\nI am grateful I was certified to administer meds when I worked in a professional setting....a skill that has helped me now with my DH's care. Finances was a 2nd stress that came into play this morning, as I pondered how unfortunate it is I cant be paid for doing his meds cause he's my spouse & not a client I'm careing for (& other bureaucratic reasons).

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