Tell Us: What’s Your Caregiving Stress (Day 5)?


Tell Us: What’s Your Caregiving Stress (Day 5)?

As you may know, I’ve been collecting data about your caregiving stress, the overlooked epidemic in our communities. In an upcoming webinar on June 28, The Family Caregiver’s Stress, I’ll share the current results of our ongoing caregiving stress survey and share thoughts about what’s needed to minimize the stress.

We know that caregiving stress can be ongoing. I also believe that caregiver stress is constantly changing, that what stresses you on Monday is replaced by a different stressful situation on Tuesday. To show the constant and changing face of caregiving stress, I’d love for you to tell us about each day’s caregiving stress over a period of five days. Your stories about your day’s caregiving stress will make our data about your caregiving stress that much more compelling.

In our comments section, below, tell us about the stress you’re feeling today.

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Thank you all so much for sharing your experiences. It is so helpful to hear what's it like for you!


I just went to the second funeral for this week. This was for a colleague of mine who died of lung cancer at age 65. He had decided not to treat it. The first funeral was for my 32-year-old niece, who died because the doctor didn't take her complaints and symptoms seriously. We spent many hours at the hospital with her parents. I am heavy tired. That's the perfect way to describe this.


It's been 9+ years and I'm not seeing an end to this. When my siblings come to town, I gear myself up for a reprieve, a chance to talk to them, to plan for what will happen when one parent passes and the other has to move to a smaller studio apartment or nursing home, to plan for what to do with everything in the apartment so everyone is on the same page, but then.. they come for a day or two days. A fly-in/fly-out. We're together for one big BBQ dinner for 3 hours for Father's day then they leave the next morning. They all say they want to help and then they leave before asking what I need help with. I'm tired of being \"the one\". Tired of not being able to plan vacations, not being able to be away for more then one or two nights. Tired of being quizzed about why I haven't come to visit if I don't get there often enough. Tired of going to funerals for young and young-ish friends and family while my parents seem to be living forever. In my darker moments, I think, there's no reason either of them should be alive still! They've had the world's worst diet for years - decades. They don't exercise. Dad used horrible toxic stuff to unplug the drains in the basement, over and over again - the kind of stuff that warns about wearing a mask and using in a well ventilated place - like our basement is not. My dad is a very positive person, but mom is not. She has been extremely sedentary for the last 30 years.\r\n\r\nI sound whiny and selfish these days. My caregiving duties aren't nearly what they are for so many people in this group. My parents are at least in assisted living and I'm not caring for them 24/7 in my home. But I'm tired. Tired of being responsible, tired of shouting at Dad because he lost his hearing aids again, tired of explaining one more time to Mom that my sister did not come in to town today and yes, she does have eye appts coming up. Tired of hearing her say she's going to find someone with a truck to come and pick up her stuff. Tired of feeling guilty because the stuff is no longer there.


Being tired and still needing to be \"on\".


My husband woke up 30 minutes ago with his FTD large and in charge . I guess that’s what it is. Refusing to take his “early pill.” . The Linzess is supposed to be taken 30 min before breakfast.\r\n I sat down on the edge of the bed and waited a minute. This usually works and his. Impatience gets the best of him and he says “ok giv it to me “ not this time.. Plan B I asked in my most matter of fact voice, well aren’t you g to take your medicine at all today. No ,. Plan C . Well I will just go take my shower then. Nothing. I am headed for the shower.

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