This is My First Post

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This is My First Post

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(Editor's Note: Today we welcome a new blogger, Christina, who cares for her husband. You can connect with her on her profile page: @doug1234.)

tree-219714_640Things are changing. Infusions every week, shower chair and Doug often needs help showering, walking with a cane for balance. He is very weak. Sleeps all day most days. A good day is when he is able to let someone take him to his doctor appointments.

This week we received an oxygen concentrator for the house. I'm beyond trying to get him to eat healthy. He won't eat anything I cook. Just no appetite. Strawberry pies and chocolate milkshakes from McDonald's are all he eats. I figure it's calories. At this point let him eat whatever he will. He's only 52. This week I received a hospice ad in the mail. I wasn't ready for that.

We are going on a bus tour this week. There will be lots of walking in the heat. I know he will not be able to do this but he is trying to take all these trips with me all of a sudden. He wants to go river rafting. He is in no shape for rafting.

I believe I'm in stage 2 of the stages list. I have no one in which to talk to. Dysautonomia is rare. But, I figure here we all share the process.

In 1995 he was told he had 8 to 10 years to live. I just recently found this out. Borrowed time.

He can feed himself and potty just fine. He even tries to help around the house a little.

That's all for now.

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