What Have I Done?

Caregiving.com Archive

What Have I Done?

Caregiving.com Archive
isolation-mdIn my mind, I've put myself in seclusion from lewy.

Seclusion from the blog. Seclusion from caregiving groups.

I've separated myself to think, ponder, to pray. I may have to live with it but I don't always want to think about it so I am giving it the cold shoulder. The silent treatment.

For now, this seems to be my self defense for protecting my minds peace as I sort through things. Yet even though I'm ignoring all things lewy, my mind is always churning about ways to make things easier for Hubby. I don't think that can be classified as denial when it's at the front of my thoughts all the time.

One of the big issues Hubby has had for quite a while has been chronic back pain.

Poor guys complains all the time. Those compression fractures he suffered a few months back didn't help things either and we have tried to find ways to alleviate the pain. At the least I would like to find a way to cap it to a certain level since it seems impossible to be rid of completely.

The, what feels like, never ending complaining finally weighed heavily enough on me that I vowed to do whatever we could at any speed we needed to, to get rid of Hubby's pain.

I made an appointment with Hubby's primary care physician even though we weren't scheduled. The VA schedules everything and we are supposed to sit and wait. I chose to jump track. At this appointment we again discussed Hubby's pain and chose to take a more aggressive approach caring for it. In the past I have always dragged my feet with anything new for fear of side effects worsening lewy. I suppose I realize that lewy is going to stay its course no matter what we do or how fast or slow we do it. Still, in the back of my mind I ask, "Am I doing the right thing?"

Another avenue for relief was a chiropractor. In the past Hubby has seen a chiropractor and feeling certain that his back had healed enough I made another appointment for an adjustment for Hubby. I guess you could say I am trying to adjust his attitude. ;-)

If you ask Hubby he would probably tell you I need mine adjusted too. :0

After the intake which included the info about his recent falls and compression fractures and the lesson on Lewy Body--What? You thought I wouldn't?--the plan of action was neck x-rays and start there first. I got to see the x-ray and it was such a surprise to me when I noticed Hubby had five, yes, FIVE! healed compression fractures in his neck most likely from his falls he had taken over the last several months. 

When I had taken Hubby to the ER nobody ever x-rayed his neck when he was seen, only his hip and back. After his last couple of falls his main complaint was his lower back so I never thought about his head or neck unless he had hit his head, which he hadn't, but just a hard sitting jolt can be enough to compress your vertebrae in your neck. Now I know to ask for head/neck x-rays too if we ever need another ER visit.

Dr Chiro adjusted Hubby and, believe it or not, Hubby said he felt better afterward! YAY! 

The new meds, morphine, came in and Hubby started taking them. I watch him like a hawk but I don't really know what I'm watching for anymore. He's sleepier now, if that seems possible. Sometimes when he wakes he looks like he's in another world. I guess this is odd because I've always been included in this other world of his, now I'm just a stranger looking in. Maybe this is just an adjustment period for the meds, maybe it will be our new normal. Only God knows that. 

I ask myself, "What have I done?" 

It is then I must listen to my inner peace repeating 2 Timothy 1:7 "For God hath not given us the spirit of fear, but of power and of love and of a sound mind." And reminding me, "You did everything you could to give Hubby the best quality of life you could. You have sought out ways to release him from the pain and are taking steps to do so, You love him even when he seems unlovable. You're doing the best you can with what you have and know." 

That's what I have done.


I guess I don't need to tell you about the cognition issues since we all know what direction they are going in also, I will share some fun with you though! 

Hubby is always wanting to "go" someplace and some of the time we actually do venture out in the late afternoons. One day Hubby decided he wanted a steak for supper. I'm not going to complain about that so we stopped at Chili's.


Sure enough they prepared an excellent ribeye. So tender and juicy! mmmm


Anyway,


I scarf mine down like I'll never eat again and Hubby eats his mashed potatoes.


Seriously, there's a steak sitting there, I even cut it up for him.


I ask if his steak is good, he says "Very", we brag to the waiter and manager.


The bill comes, $16 each! I gulp and pay it, ask for a to go box for Hubby.


We get home and he asks me if I want the steak. I think about it but decline.


Willpower, go me!


The next thing I know, he's feeding a $16 steak to the DOGS!!!!! 

At least he asked me first. ROFLOL!!!!


On another occasion Hubby asked me "Who do you work for?"


I answered, I don't work for anyone.


He then asks "How do you make it?"


Apparently my answer of "Honey, I'm married to you" was hilarious because he busted out laughing! LOL!


And again, In an effort to figure out who I am, Hubby just made me show proof of identification from the V.A. My drivers license wasn't good enough for him. Good thing I had my medical card. o_O 

Like this article? Share on social

2 Comments

Sign in to comment

Denise

Hi--First, I love your new picture!! Beautiful. :)\r\n\r\nHow does Hubby feel now that he's had a few days with the meds? \r\n\r\nI love how you go to your inner peace. Maybe your period of seclusion is really about spending time with your inner peace--gaining strength and comfort from knowing your faith gives you your best. \r\n\r\n:)

ejourneys

Oh, Kathy, I'm nodding and nodding at this. I get that whole seclusion part. After my partner's endless theories and catharses, I just need to curl up and recharge. Treat her disease as a force of nature and focus on simple comfort, hers and mine.\r\n\r\nGood for you for going with your gut and jumping that track!\r\nAnd bless the dogs. :-) I'd say that's steak therapy for both them and Hubby. \r\nThat's one well-earned medical card you've got. :-) (((Hugs)))